davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

The new hate crime figures are out, apparently disability hate crime is slightly down. Am I being cynical in assuming that's probably because some of the haters are too busy committing hate crimes against muslims and/or jews and/or anyone who doesn't look like them?

Trans hate crime is also slightly down, but I'd presume that would be people feeling even less safe to report it, rather than an actual reduction.

The figures exclude the Met, the biggest force in the country because they're busy adopting a new crime reporting tool - so give us their figures as a separate entry, don't just exclude them entirely. *headdesk*

Somewhat embarrassingly for the police/Home Office, the Office for Statistics Regulation is still insisting they include a caveat to say their data is actually pretty crap.

What comes through when considering that the figures cover the period of the Stockport-related race riots is that the figures, even if recorded as intended, are utterly incapable of recording mass events like riots. If 300 people are chanting racist slogans and throwing bricks, but the police only arrest 3 of them, then only 3 crimes would be reported. It's definitely working as intended, but is working as intended what they actually intended?
davidgillon: Text: You can take a heroic last stand against the forces of darkness. Or you can not die. It's entirely up to you" (Heroic Last Stand)

My sister and I sat through a 4 hour online seminar on Saturday, on what to do to prep claiming Continuing Healthcare funding for my mother (so the NHS pays for her care home place rather than the family). The presenter was a lawyer, backed by a MH nurse turned patient advocate. They were obviously trying to drum up work for their little firm ("The Lawyer and The Nurse"), but in a "we're here if you decide you need us" way, not "you absolutely need us". Very useful.

There's a daunting amount of stuff to do before the Decision Support Tool assessment on the 22nd, and we'll likely need to ask for a postponement in order to get stuff like copies of my mother's hospital notes and understand the relevant bits - we'd hoped we could rely on her discharge notes, but there are a couple of things missing because the in-hospital reaction was "well, that's weird, not sure why it's happening, not a lot we can do", which translated to not mentioning it in the discharge notes at all. *headdesk*

I did get to ask during the Q&A about my worry that the sheer extent of the crossovers between symptoms in different areas would be missed if the nurse-assessor wasn't familiar with my mother's rare issues, and was told we absolutely needed to emphasise every crossover in writing, not assume they would recognise them, and that it would be useful to get input from my mother's consultant.

We've actually done this before with my dad, but his case was so obvious that we didn't really have to fight to get it, though there was one attempt to take it away where I now know I happened to say the right thing to get it for him completely by accident.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)


Burn For Me, Ilona Andrews

Girl meets boy, boy bundles girl in rug, and whips her off to his fortress of solitude where he chains her to the floor and tortures her for information is not the most promising start to a relationship, but they make it work.

In a world where mage families are almost immune to the law, Nevada Baylor is a PI, well, the PI, for her small family-owned firm. The Baylor agency sticks with the safe stuff: cheating husbands, insurance fraud, and the like and steers clear of the Primes who run the mage familes. But they're mortgaged to the much larger, and Prime-run, Montgomery agency, and Augustine Montgomery has few qualms about blackmailing Nevada into taking on a job that isn't so much career suicide, as suicide suicide. Spoiled wild-boy Adam Pierce just burnt down a bank in central Houston, killing an off-duty cop, and his mother, Prime of her House, wants him found and returned to her before the cops can shoot him for resisting arrest. The problem for Nevada being that Adam Pierce isn't just a pyromaniac, he's a prime pyromancer, quite capable of burning her to death with just the power of his mind.

Nevada has a secret ace up her sleeve - she knows when people are lying. And a few questions in the right places get her a fleeting meeting with Adam, who turns out to have all the emotional maturity of a toddler on a sugar high. And it's in the immediate aftermath that Nevada runs into the other bad boy in the case, Connor 'Mad' Rogan, Prime of his House and one time weapon of mass destruction for the United States government, who isn't after Pierce, but his sidekick in the arson, Mad Rogan's 16yo cousin, and who'll take whatever measures are necessary to find him.

Shenanigans ensue.

White Hot, Ilona Andrews 

Nevada Baylor is just getting used to the idea that her truthseeker magic may be as strong as any Prime's when another Prime-related case drops into her lap. The lawyer wife of animal mage Cornelius Harrison was just murdered, along with three other lawyers and their security team. Their employer is giving him the cold shoulder, and no one else will take the case. If the Pierce case skirted the mage Houses, this one is going to take Nevada straight to their heart, and her secret may be at risk. And then she discovers that the security team worked for Connor, and he's out for revenge.

Come for the shenanigans, stay for a Mission Impossible heist played out with two ferrets and a Chinese ferret-badger.

Wild Fire, Ilona Andrews

Nevada's secret is out, everyone knows there's a new Prime truthseeker on the scene. And that includes Victoria Tremaine, scariest truthseeker in the country, a woman for whom ethics are things that happen to other people, now revealed as Nevada's grandmother, and scary-granny wants her granddaughters back in House Tremaine. That's bad for Nevada, worse for her teenage sisters, because Nevada's the one who got the least scary talent. But now she has Connor to back her up, if she can just get him to understand the difference between backing her up, and taking over. As if that wasn't problem enough she also has another case, and this time it's for Connor's ex-fiancee.

Houston may not survive the shenanigans. 

*****

Girl meets scarred, brooding, billionaire veteran isn't exactly an unknown trope in romance, and this series - there's another three books involving middle-sister Catalina - is definitely in the romantasy end of the genre paddling pool. But it's well imagined, the world-building and magic systems are solid, and it also stands up a fine urban fantasy, while each case is a perfectly presentable mystery. I bought them because they were cheap (£2 each on Amazon), but I was pleasantly surprised by how good they are, particularly the characterisation - there's a bait and switch with Nevada's attitudes in the first book that is pure delight.

Wicching Hour, Sea Wicche 3, Seanna Kelly

It's the grand opening of Arwyn Corey's gallery, and all her dreams have come true. But you can't have dreams without nightmares, and it's time to run down the sorcerer responsible for so much death and despair. But before that there's another serial killer to be hunted down, and a betrayal that will destroy the foundations of Arwyn's life.

I was a bit annoyed about that betrayal, because it's thrown in, and then any chance of resolving it, or even understanding it, is whipped away. But otherwise a nice addition to the series.

Night Owl Books, Seana Kelly

A spin-off novella from the Sea Wicche books, and actually a re-read from earlier in the year, but I'm pretty certain I never reviewed it.

Orla is a literal night owl, proprietor of Night Owl Books, hidden up a lane in rural Monterey, opening hours 8PM til 6AM, and an Eagle-Owl shifter. When a woman runs into the bookstore after a terrifying encounter with a man on the road, Orla finds herself drawn into the activities of the unofficial local magical law enforcers - though a couple of them do have actual badges, and one is a very attractive bear shifter. They're quickly sure that the man is a werewolf, and that Orla is precisely his type, which raises one possible, if dangerous, method of catching him.

Orla's an interesting character, the writing is 1st Person, and the fourth wall appears to be something she has no truck with. She says teachers kept assuming she was autistic, but it's just part of being an owl shifter, but I'm really not certain that makes any difference. Understanding other people and social interactions are definitely works in progress for her, which makes for an interesting viewpoint character.

It's a shortish read, and having a quarter of the Kindle page count turn out to be a preview of Wicching Hour struck me as a bit naughty.

 Re-reads

The Taellaneth, Vanessa Nelson

Five book series: Arrow is the much-abused half-human gofer for the elf-adjacent Erith and their government, the Taellaneth. Sent to aid the werewolf-adjacent Shifkin investigate the murder of their leader's mate, she's about to find out that the demon-adjacent Usurji have returned, and the Taellaneth are about to find out that abusing Arrow may not have been their brightest idea.

The world-building is a bit shaky in places - we never really get a good explanation for how the humans, and their technology, ended up squeezed in between the Erith and the Shifkin, but the characterisation is fine and Arrow may be one of my all-time favourite characters.

Outcast, Grey Gates 1, Vanessa Nelson

Max Ortis is a Marshal, one of the handful of people charged with protecting the city from the monsters that regularly emerge from the mists and jungle that surround it. In theory the marshals don't get involved in law enforcement, but someone is killing mages, and Max has a horrible feeling that the serial killer is trying to reopen the gates to the demon realms. And seeing as Max was the person who had to shut them again last time, even if no one believes her, she's really not eager for a repeat performance. Meanwhile, reminders of her previous life as an apprentice of the Order of the Lady of Light keep cropping up in the shape of Bryce, tall, brooding enforcer for the Order.

The worldbuilding here is decidedly shaky, there is no way that the city has a functional economy, it doesn't even have an agricultural sector as far as I can see. But I like the characterisation, and the mystery is serviceable.

Called, Grey Gates 2, Vanessa Nelson

The Huntsman Clan are up to something, and Max is worried that abducting and killing young people may be the least of it. Meanwhile the city is running out of fuel, so the Marshals, police, and the Order are going to have to run a convoy through to the refinery that used to be part of the city before the jungle claimed it.

The plotting's as shaky as the world-building in this one, but I still like the writing and characterisation.

Bewicched, Sea Wicche 1, Seana Kelly

Arwyn Corey is a multi-talented artist, working in both paint and glass, and she's about to make her dream come true by opening her gallery in an old cannery on Monterey's sea shore. But Arwyn is also a witch (well, half-witch, half-sea fae) and her mother and grandmother are insistent she join the family council, because they think there's an evil sorcerer out there. Not to mention there's a detective she went to school with who has heard that Arwyn is a psychic and is desperate enough to ask for her help in a child-abduction case. And to make matters worse the hot werewolf building her deck is really distracting.

I still think the title should be punished for crimes against spelling, but these are a fun read.

Wicche Hunt, Sea Wicche 2, Seana Kelly

Arwyn is trying to get her gallery ready for its grand opening, but werewolf boyfriend Declan is pretty distracting, and he's still going to have to fight the local Alpha to the death if he wants to stay with her, meanwhile Detectives Hernandez and Osso have not one but two murders they need help with, and the sorcerer who killed her aunt is still out there. Scariest of all, Arwyn may be about to meet her father for the first time.
davidgillon: Text: I really don't think you should put your hand inside the manticore, you don't know where it's been. (Don't put your hand inside the manticore)

 I went to grab the bunch of spring onions out of the fridge last night and they wouldn't move. Further investigation revealed they were welded to the shelf by a block of ice the size of my fist, which was also blocking the drainage hole at the back. I had to empty half the fridge to be able to loosen everything off with some hot water and leave the chunk of scallions to defrost in a bowl.

Maybe need to check what temperature the fridge is set at!

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 I’ve just got to be really clear about this: there is no evidence to link the use of paracetamol by pregnant women to autism in their children. None.

In fact a major study was done back in 2024 in Sweden, involving 2.4 million children, and it did not uphold those claims. So I would just say to people watching: don’t pay any attention whatsoever to what Donald Trump says about medicine. In fact, don’t even take my word for it as a politician. Listen to British doctors, British scientists, the NHS."

I don't always agree 100% with Wes Streeting, our Health Secretary, but he nailed it this time.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

TLDR: hypermobile Ehlers Danlos Syndrome, with known immune system crossovers, turns out to have weird immune system proteins on top of all the other weirdness.

Interesting new hEDS paper I saw mentioned on FB today,

"Proteomic analysis revealed 35 differentially expressed proteins in hEDS, with 43% involved in the complement cascade and 80% linked to immune, coagulation, or inflammatory pathways. ... Cytokine profiling revealed alterations in nodal immune cell mediators in hEDS patients, supporting a model of dysregulated inflammatory response. Our findings indicate a systemic immune dysregulation, particularly involving the complement system and profibrotic cytokines, as a common feature in hEDS pathophysiology."

https://academic.oup.com/immunohorizons/article/9/10/vlaf044/8256436

The EDS Society write-up says there's another paper in the works from another team with similar results from a larger sample, and that includes people with HSD diagnoses, not just hEDS (unsurprisingly, I'm convinced the hEDS/HSD divide is bad science).

https://www.ehlers-danlos.com/exciting-new-research-sheds-light-on-heds-biology/

 

 

 

Close. Ish.

Sep. 9th, 2025 03:29 am
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 I had one of those login challenges: someone in X is trying to log into your account, if it's you enter the code we just sent.
I'm used to X being well outside the local area, but the latest one sets a new record. Rather than Kent it was "someone in East Kilbride", so outskirts of Glasgow and only 435 miles out!
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Pretty much all the senior members of Trump's cabinet created a chat group to discuss attacking the Houthis, and didn't notice they'd accidentally included the editor of The Atlantic.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

 

The USAF just admitted they* named their new fighter the F-47 to 'honor' Trump (the 47th President).
No matter what you think of Trump, it's a piece of marketing genius to call it the F-47. Not for marketing outside of America, it's just going to provoke derision, but for internal marketing of the project to Congress. After all, no congresscritter is going to want to be known as the one who cancelled -47.....
* "in consultation with the Secretary of Defense", which is wonderfully ambiguous and covers anything from "I told him I thought it was a good idea" to "he ordered me to over my strongest protests".
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Posted this earlier in the comments to the Guardian's live politics feed, pointing out the massive gap in the logic of Labour's disability benefit cuts:

Completely missing from Labour's whining about the difficulty of getting disabled people into work is any discussion of the far cat in the room - the widespread experience by disabled workers of discrimination in the workplace from management (and colleagues, but mostly management). A gag clause means I can't name the national flagship company where a very senior manager engaged in a multi-year campaign to drive me out of the company, to quote him 'your disability is a threat to my schedules' (it wasn't), and where the rest of management closed ranks around him when I challenged him on it through the grievance procedure.

The DWP's Disability Confident campaign asserts it isn't disability discrimination, managers are just 'embarrassed', which goes down about as well with disabled people as you might imagine.

Unless Labour sets about a serious campaign to drive disability discrimination out of the workplace, then the only logical conclusion is that they don't care about getting disabled people into the workplace, just off the benefits bill. And that's disability discrimination as government, as Labour Party, policy

 

Deeply, deeply furious with Starmer over this.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Phone conversation with my sister today during which it transpired that I've been thinking the current day is tomorrow since at least Thursday, so thought today was Monday - in my defence I've spent most of the week in bed (or on the bed reading) with a heavy cold - mostly over it - and not really keeping track of what was when. I did read at least one newspaper article on the Guardian site that should have clued me in on Saturday - second day of the Barclays IT outage that started on Friday, but decided they'd made a really awkward job of describing it lasting into it's third day instead.

What? Me be wrong? Inconceivable!

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister on the phone this afternoon: I just took Mam's blood pressure, it's 199/119. What should we do?

Me: Eeek!!!

Turns out the NHS have an app for that: https://www.nhs.uk/health-assessment-tools/check-your-blood-pressure-reading

Give it your reading and it tells you what you need to do. 199/119 is urgent GP appointment today, or call 111 now territory.

Andrea rang 111, they got her an appointment at Urgent Care, the doctor at Urgent Care said A&E, now. So Andrea drove her straight to Darlington rather than wait for an ambulance.

A&E were advertising a six hour queue when they arrived at 5:30, but Mam got rushed through the system, and every time they checked, her blood pressure was lower, and when her bloods came back fine they sent her home about 8:30. We're no wiser as to whether it was adrenal, current infection, meds, or just being wound up with everything that's going on, but hopefully it's settled. (And it's a hell of a lot better than having to wait until near midnight to be seen).

All the things crossed for no crises tomorrow.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

I managed a whole 24 hours at home before getting to "I may need to throw everything in a bag and head back to my mother's." Which didn't make for a restful night's sleep.

Fortunately it looks like that infection is responding to antibiotics, it's just a pain in the backside that we can tell by her mental state that she has something starting about four days quicker than the medical system can confirm it and start treating it.

But that's yesterday's problem, today's problem where it would be useful to be there is drains/sewers backing up. Not to the point of getting in anywhere they shouldn't, but definitely to the point of knowing there's a problem. Next-door's 80+yo ex-husband (and more to the point ex-clerk of works) has stepped in to help try and pinpoint where the problem is, but half the downstream neighbours are out and the one next door to my sister's house is still furious with him and claiming he broke his drains the last time this was a problem, 30 years ago. Fortunately they decided to call off the fisticuffs and call out the waterboard.

Funniest line reported by my sister from the cantankerous 80yos: "You used to be married to that girl up the street" - J's just short of 80 herself, not sure she gets called 'girl' very much anymore! 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
Thought I'd have to do a Tanny Grey-Thompson and drag myself off an LNER train at KX earlier after passenger assistance failed to show. And while TGT had it happen in the wee small hours this was twenty to three in the afternoon.

And it's not even as if I did turn up and go, the assistance has been booked for 10 days, and Darlington said they'd confirm I was on my way when they put me aboard, which would still have given KX two and a half hours notice.

I sent at least two different passengers and a cleaner looking for someone to sort it, but *crickets* *tumbleweed* *crickets*

(This is where the Azumas aren't as good as the 225s and the 125s, the wheelchair spaces on those were in the coaches either side of the buffet coach, so there was always people about with comms, while on the Azumas they're in the end coaches, which is fine for 1st Class with the guard and the driver stood there, but if you're in Standard class there's no train staff within a couple of hundred metres).

As there's a grab handle on either side of the doorway I was gradually leaning further and further out to try and see if anyone was coming. Until eventually there was a panicked message over the in-train tannoy saying not to do that and someone was on their way, really. They even had a cleaner come by and tell me the same thing.

Two Passenger Assistance staff eventually turned up after about 15 minutes. I asked the one who did the ramp what had happened and he said he didn't know, they'd just got the message to come and get me.

Halfway down the platform I met another PA guy, who said "Sorry about that, your train was early, that was why there was no one there."

My train was due in at 14:39, guess what time it arrived....
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

 We took a ride up the dale yesterday as my mother hadn't been anywhere since before Christmas. Lots of bits of snow still lying in sheltered spots up around Tow Law, a good week after it had melted at lower altitudes - some of the really protected spots out on the moors may well retain pockets of snow into summer.

Our putative destination was a garden centre, though at this point of the year everyone seemed much more interested in having something to eat at its attached restaurant than in buying plants - in fact the restaurant was popular enough we had to park in the overflow carpark and  they were handing out pagers to summon you when a table became available.

"I had the all day breakfast, it was beautiful" someone told us coming out as we were going in.
"Order something nice" my sister ordered as we were seated, "We haven't had the chance to take you anywhere since you got here."
"I'll have the all-day breakfast, then."
"Mam and I are having scones, order something that won't mean we're sitting around waiting for yours to be cooked!"

That's me told, then.

Waitress appears, "I'll have the tiramisu"
"Sorry, that's sold out."

*headdesk*

"Uhh, <rapid flick through menu> I'll have the cheesecake."
 

Service wasn't especially fast, but the cheesecake was pretty as a picture when it appeared - a round serving, topped with some thin stripes of chocolate, half a strawberry, a raspberry and a blueberry.

My initial thought was it was a bit on the small size, but it was so rich it was actually the perfect serving. The cake melted in the mouth and if the blueberry was a bit blah, the raspberry was superbly tart and the strawberry so sweet it was like biting into crystallized sugar.

I'd ordered a mocha with it, which was also really nice, but possibly not the ideal companion - black coffee might have made a better match to counterpoint the richness of the cheesecake.

So the moral of the story is sometimes you have to forget what you think you want and let the universe order the nice things for you.

 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

One advantage of spending all my time at my mother's is that there's a much higher likelihood of snow than down in Kent, so this weekend's weather system delivered our second snow of the winter.  (Though I suppose technically the first snow of Winter was in Autumn).

I'd estimate we got about four to six inches, though the weather station at Copley, 9 miles up the dale as the crow flies, got 25cm/10 inches, the most recorded anywhere in the country. Admittedly Copley is on record as the snowiest place in England.

The snowfall did last for an extended period, we had a covering when I went to sleep at 3AM on Sunday morning, and it was still snowing late into the evening, but temperatures were marginally above freezing, and it turned increasingly to sleet as evening progressed, so a lot of it had melted away by Monday morning. OTOH we still have a fair bit about and Weardale Ski Club reckons they have enough up the dale to keep operating until the weekend.

I've barely been out, but my sister reports Poppy the cocker-spaniel's new favourite thing is to dig her head into the snow, then run forward as fast as she can...
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 It felt like I'd been punched last night when I read that Lisa Egan had died. Gone far too young.
If my memory isn't playing me false, Lisa, @LisyBabe in many places, is the one who first dragooned* me into writing about disability and the threat of being Austerity's chosen victims, and that so early in the Cameron years that Blair may still have been in power.
The best way to honour her life I can think of is to link to my favourite piece of her writing, one I've often pointed people at when trying to explain the importance of how you talk about disabled people, and why the Social Model of Disability matters.

I'm Not a Person With a Disability, I'm a Disabled Person

* I'm really not sure I got any choice in the matter
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 My sister cooked, I washed up. Only disasters were leaving the yorkshires in the oven rather than on the plates and this year's M&S stuffing - bring back the pork and leek!

To quote my dad's old line "an elegant sufficiency" was had.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Toddler opposite is watching cartoons

<Cartoon singing voice>

"Down, Down, Down, Down, Down, Down, 

Down, Down, Down, Down, Down, Down ... </Cartoon singing voice>
 
My immediate thought was: This is going to be a particularly weird version of The Ballad of the Witches Road
 
<Cartoon singing voice>
London Bridge is Falling Down ...
</Cartoon singing voice> 

Ah, not the Agatha All Along version ;)

 

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