After three days in a row of not getting to sleep until after the sun was up (and then being woken mid-morning), I've basically spent the entire day asleep, apart from answering several phone calls from my sister and then almost immediately falling asleep again*.
I answered those sitting cross-legged on the bed, and I fell asleep in that position and then slept that way for several hours. My hips are NOT happy with me.
TLDR: hypermobile Ehlers Danlos Syndrome, with known immune system crossovers, turns out to have weird immune system proteins on top of all the other weirdness.
Interesting new hEDS paper I saw mentioned on FB today,
"Proteomic analysis revealed 35 differentially expressed proteins in hEDS, with 43% involved in the complement cascade and 80% linked to immune, coagulation, or inflammatory pathways. ... Cytokine profiling revealed alterations in nodal immune cell mediators in hEDS patients, supporting a model of dysregulated inflammatory response. Our findings indicate a systemic immune dysregulation, particularly involving the complement system and profibrotic cytokines, as a common feature in hEDS pathophysiology."
https://www.ehlers-danlos.com/exciting-new-research-sheds-light-on-heds-biology/
No idea what started it - possibly going out for a run in the car yesterday afternoon, it's my pedal pushing foot - but my right ankle has been killing me since yesterday evening. Anyone know which ligament/muscle/whatever runs from the outside of the foot and up the outside of the calf?
It's done it occasionally before, but I don't recall it being quite this painful (I'm having to actively ignore the pain, rather than just ignore it, if that makes sense).
Of course the advantage of being bendy is I have stuff at hand to splint it in the one position that seems to be least-painful, plus an armoury of walking sticks, crutches and wheelchairs to turn to if I need them, but it's still annoying.
I mowed the lawn this afternoon, as it's garden waste collection day tomorrow, and I pushed myself to do it in one go because I was convinced if I sat down for a break I'd never start again. By the time I'd finished my hip was screaming, so I put everything away and decided I'd earned a beer.
Turns out it wasn't just my hip. I got the beer can open, but when I tried to lift it my arm was shaking so much that beer was splashing wildly out of the hole, and it's still not remotely steady two hours later even though the can is now virtually empty.
(I did get the beer in the end, it just took two hands to do it)
Three sessions of working on the eBay chair setup, including straining to my limits to budge locked bolts and screws, didn't hurt myself once.
Push a cupboard door lightly shut, left index finger bends back on itself and the joint pops.
It'll probably be fine in a day or two, but just aarghh!
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timeasmymeasure
