davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

 There's a really good interview in the Guardian today with Sophie Morgan, who's a reasonably prominent UK tv presenter, and wheelchair user.

Her two decades as a presenter and as a disabled person have pretty much gone hand in hand as she started in a couple of reality tv shows almost as soon as she was out of rehab from being spinally injured in a car crash, but it's depressingly revealing to see how much she's had to overcome behind the scenes to be taken seriously as a presenter of disability stuff, never mind non-disability.

It's also interesting to note that I read a lot of Guardian interviews, which have occurred in all kinds of venues - hotel suites, zoom, people's kitchens, the French countryside - but this is the first one I can remember where it's mentioned it was in the Guardian offices; it's own comment on accessibility?

The Trials and Triumphs of Sophie Morgan

 



davidgillon: Text: You can take a heroic last stand against the forces of darkness. Or you can not die. It's entirely up to you" (Heroic Last Stand)

I've been talking to journalists again.

‘Sickening’ vaccine priority list ‘shows disabled people are disposable’

 

Lisa Egan, a friend of mine and fellow activist, spotted that the current priority list for the Coronavirus Vaccine, whether Pfizer or whatever, currently has the working age clinically extremely vulnerable contingent only sixth in priority to receive it, and prompted John Pring of Disability News Service to write about it. As I was helping spread the word I got tagged for comments as well. So the article has comments from Lisa, me, and from Baroness Jane Campbell who is going to ask questions in the Lords (which definitely pushes my impostor syndrome into high gear, doubly so as she's herself clinically extremely vulnerable).

The priority list just doesn't make sense, it has care home patients as first priority (which no one is going to object to given the massacre of residents in the first wave), but explicitly excludes those care home residents of working age. And as some working age adults get stuck in care homes intended for the elderly because of  inadequacies in adult social care, that means those care homes will have to continue the barrier nursing that is straining them to the limits. The caveat just doesn't make sense. And apparently the government doesn't understand it either, because its response to the news that people with Learning Disabilities died at up to 30 times the rate of their non-LD peers (for the 18-30 age group, 6x more generally), the Care Minister said yesterday that at least those of them in care homes would get the vaccine first. Er, no Minister, that's not what your plan says.

The full priority list is:

  1. older adults’ resident in a care home and care home workers
  2. all those 80 years of age and over and health and social care workers
  3. all those 75 years of age and over
  4. all those 70 years of age and over
  5. all those 65 years of age and over
  6. high-risk adults under 65 years of age
  7. moderate-risk adults under 65 years of age
  8. all those 60 years of age and over
  9. all those 55 years of age and over
  10. all those 50 years of age and over
  11. rest of the population (priority to be determined)

So, referring back to my title, the 65yo regular marathon runners will indeed get the vaccine before even ventilator-dependent care home residents of working age. (I had initially been using immuno-suppressed and ventilator dependent as my comparator, but apparently if you're immuno-suppressed you won't get the vaccine at all, you'll get an antibody cocktail instead).

Yesterday also had the wonderfully reassuring sight of Alok Sharma, the Business Secretary, addressing a journalist's question about whether Brexit will disrupt the vaccine supply chain -- all our doses will be coming from a site in Belgium -- and waffling on about Brexit and how business needs to listen to his ministry, but without ever mentioning the vaccine, for a minute and a half, not once, but three times, in response to three separate questions from three separate journalists. Which was wonderfully reassuring.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
Rochester High Street Forum get back to me on wheelchair access:
" We have worked out a solution to your concerns and would like to discuss this with you. We have a regular meeting on market matters every Thursday at 10:30. Unfortunately our usual venue does not have wheelchair access, so we would welcome a suggestion of a place in Rochester where we could meet up."

*Headdesk*

This Saturday's market was at least as bad as the last one for kerb cuts and footpaths blocked by stalls. So I pointed this out on their FB page, with pointed quote of their promise from last month to keep kerb cuts clear. Not only was there a stall on top of the kerb cut I use, but the one in front of the War Memorial, while admittedly not blocked, had a stall the full width of the pavement on either side, which was rather taking the piss.

They replied saying: "It was accessible, I saw someone take a photo and use that kerb-cut"

My response: "Yes, that was me, recording how unsafe it was" (just marginally less unsafe than going straight off a high kerb)

Anyway, they've now agreed to meet this Thursday, and we've suggested the cafe in the tourist info (one of the few genuinely accessible locations on the High Street). I'm not sure they quite realise what they're getting into in meeting my friend Sue, who'll be there to give the powerchair perspective. She's already an MBE for work on disability access, and she's one of the backroom advisors to Lady Tanni Grey-Thompson on her disability stuff (from the US perspective, it's roughly equivalent to bringing a senior senatorial aide or lobbyist to beat up a small town chamber of commerce).

Catch 22

Apr. 11th, 2011 11:09 pm
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
It being the end of the financial year, my bank invited me in last week in order to discuss my savings and investments. So I struggled in and explained that, despite the savings I racked up during a couple of decades of work, not to mention my redundancy payment, I am currently receiving ESA (disability benefit), which doesn’t cover all of my outgoings, and, as it is Contributions Related ESA, at the start of the next financial year it will drop to nothing, so I really need to optimise my savings and investments.

What I wasn’t expecting to be told in reply was 'Sorry, the FSA won't let us give you financial advice if you have outgoings exceeding earnings.’ So, the government is going to force, by its own estimates, 300,000 contributions-based ESA claimants to live on their savings as of next April, but won't, for that very same reason, allow the banks to give them financial advice on how to maximize the income from those same savings.

I seem to have wandered into Joseph Heller’s ‘Catch 22’....

Also posted to Where's the Benefit  along with a larger piece on the abuses of WCA.
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
I'm feeling guilty for not being there in London today at the March for the Alternative, several disabled friends from the Where's the Benefit mob are marching, or should I say wheeling, but physically it's too much for me to contemplate. So I've done what I do best and put my protest into words in a trilogy of posts:

No Alternative

The Great Unheard

Kettled in Cyberspace
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
 Many disabled people want to be part of the protests on the 26th against the Tory cuts, particularly their rabid attack on disability benefits, but physically aren't able to be there in person. To let all of us take part Disabled People Against Cuts are organising a virtual protest, with people able to log their protest on a virtual map of the UK which can be found here.  Unfortunately it isn't explained particularly clearly, but what they want is people to email them at 
DPAC26MARCH@GMAIL.COM with their name, the first half of their post code, and a message of support.

You don't have to be disabled to register your support, just to oppose the Tories in their campaign to take from, and demonise, the people who can afford it least.
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
The original is all over the net, so no idea where it originated:

A banker, a Daily Mail* reader and a disabled person are sitting at a table sharing 12 biscuits. The banker bolts down 11 of them and turns to the Daily Mail reader, "Watch out for the benefit scrounger, he wants your biscuit"
 
 
Any resemblance between the banker and Lord Freud** is purely intentional.
 

Contributions have been thin on the ground for the past few weeks as even typing has been uncomfortable, but that seems to be easing off and I have a new, if short, post up at 'Where's The Benefit' on Nick Clegg's*** 'Alarm Clock Britain'.

* Notoriously right wing daily given to regularly labelling disabled benefit claimants as scroungers and frauds.

** Former banker and current Minister for Benefit Reform, this is like putting Dracula in charge of the blood bank.

*** Deputy Prime Minister and Leader of the Liberal Democrats.
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
 
Links to three analogies and/or metaphors that I think can really help people to understand what it is like to live as a disabled person. Firstly because I think that they are vital to understanding us, but on a purely practical basis I also want to have the links in one handy place for the next time I need to club someone who just doesn't get it over the head with one of them!

The Spoon Theory, how fatigue-based disabilities limit lives.

The Gorilla Theory, disability as 300lb gorilla.

The Self-Narrating Zoo Exhibit, to remind people that we can be disabled by those around us, even when they think they are working to empower us. (This was coined for the autistic community, but I think it actually applies generally).

I can't claim credit for any of these, the Spoon Theory is by Christine Miserandino, the Gorilla Theory by Batsgirl and the Self-Narrating Zoo Exhibit was originally coined by Jim Sinclair, with the write-up here by Zifendorf, but I heartily recommend them all.

J'Accuse!

Jan. 18th, 2011 03:15 am
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
I Wonder What You Were Thinking

… when you informed on me to the DWP? 

Did you believe the yellow rags, the Scum, the Heil, the Vexpress? Do they shape your every thought when they label us fakers and fraudsters and the cause of all your woes?

Did you believe Ian Duncan Smith when he blamed us for the banking collapse? George Osbourne and his lackeys when they label us workshy? 

Do you envy me ESA’s £95 a week, which with Benefit Reform will soon enough be £0 a week?

Did you thrill over giving me an imagined kicking for my sins, not knowing I might still feel every punch, every blow, physical act or none? 

Did you wonder about practicality, think how I might manage to hold down a job, when I’m lucky to get out of the house for a whole four hours in the week?

Did you realise that it was you who was committing the crime, not I; Hate Crime, spite crime, little-minded bigot’s crime? 

Or do you simply despise me because I’m disabled?

   
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 I've posted a new piece over at Where's The Benefit, talking about my experiences of trying to claim Jobseeker's Allowance with a disability: take three parts French Farce, two parts Jacobean Tragedy and mix well....

I keep meaning to link to my other WTB posts from here, as much to give me a shortcut to them as anything else, so seeing as we're on the topic....

Osbourne: VAT Increase Designed to Hit Disabled Hardest

The Devil is in The Details

The Perfect Storm?

WCA Review: Yet More Questions

A Valued Part of Society?

The WCA Independent Review: Fit for Purpose?
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
 Ick, 3000 words sent off to the Department of Work and Pensions' Call for Evidence on why the ESA Work Capability Assessment is broken.

Mostly repeating the tale of woe reported in my very first blog post, but with added analysis as to why the problem may be the entire DWP ethos (essentially they've screwed up pretty much every time they have talked to me about disability, we're way past 'three times is enemy action'). It's taken until now to be able to face the fiasco that was my WCA again, and I can make a convincing case I've still got elevated pain levels four months later!

Submissions have to be in by Friday 10th September, so if you have anything to say, take a look at this quick.

Tomorrow's task: the EHRC's Call for Evidence on Disability Harassment, also due by Friday (yes, I work better with a deadline). 

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