davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister on the phone this afternoon: I just took Mam's blood pressure, it's 199/119. What should we do?

Me: Eeek!!!

Turns out the NHS have an app for that: https://www.nhs.uk/health-assessment-tools/check-your-blood-pressure-reading

Give it your reading and it tells you what you need to do. 199/119 is urgent GP appointment today, or call 111 now territory.

Andrea rang 111, they got her an appointment at Urgent Care, the doctor at Urgent Care said A&E, now. So Andrea drove her straight to Darlington rather than wait for an ambulance.

A&E were advertising a six hour queue when they arrived at 5:30, but Mam got rushed through the system, and every time they checked, her blood pressure was lower, and when her bloods came back fine they sent her home about 8:30. We're no wiser as to whether it was adrenal, current infection, meds, or just being wound up with everything that's going on, but hopefully it's settled. (And it's a hell of a lot better than having to wait until near midnight to be seen).

All the things crossed for no crises tomorrow.

davidgillon: Text: I really don't think you should put your hand inside the manticore, you don't know where it's been. (Don't put your hand inside the manticore)

 Alexa conversation with my sister earlier this afternoon:

A: Things keep moving on the hearth, and Poppy (the dog) keeps sniffing at the air vent in the floor. Do you think I could have a mouse?

Me: It's definitely a possibility

A: Maybe I should put a mat over the ven... Aaaargh! It's moving, it's coming out"  [lunges offscreen]

A (off camera): No! Poppy come away! Poppy leave!! Come on, good girl Poppy!"

Camera catches her headed for the kitchen, clearly dragging Poppy.

Camera catches her running back in from the kitchen, Poppy having clearly gotten away from her

A (off camera): Poppy! Leave it! Come away!

Camera catches her headed for the kitchen, again. Clearly dragging Poppy, again.

A (off camera):  Good girl Poppy! Mam'll get you a treat in a minute!

A (Briefly on camera): It's an effin' bird. It's a full size effin' thrush! I'm just going to get something to throw over it and take it outside.

I don't remember the last time I laughed so hard!

(Bird safely delivered outside. It's not the first one to come down the chimney, it is the first one to end up under the floorboards rather than in the back of the old fireplace behind the gas fire)
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My original plan was to be away for two or three weeks: go up the week before my brother-in-law's funeral to help with organising, then stay a week or two depending on what I could help my sister or mother with.

The funeral went fine,these things are never great, but we had a polished set of undertakers (same ones we used for my dad) and our parish priest is so good at his job he lectures at the Vatican. He was perfectly happy to do a Catholic-lite ceremony, Alan wasn't Catholic, but my sister said she needed to feel it had been 'done properly' and he wouldn't have objected. The barman at the local club was one of his drinking buddies, so afterwards almost organised itself.

Post-ceremony it was obvious that my mother's household admin (which my sister normally handles) was far enough behind I'd better stay the full fortnight to help get it caught up. Then my sister pointed out that if that meant I was planning on travelling on the 30th, then I'd be leaving the day before my mother's birthday, so I shifted my plan back a couple of days, then realised that put it pretty much into the last round of train strikes, so three weeks became four and travelling last Tuesday.

And then I woke up on Tuesday, and wondered "Why is the room spinning?" And while the dizziness wasn't so bad that I couldn't get up, I really didn't think five hours on a train while dizzy was a fun way to spend my day. So my sister had to dash down to the station for me and re-book my tickets (plus assistance)  - £10 admin fee, but on their most restrictive (aka cheapest) fare that didn't seem too bad. Annoyingly I'd probably have been okay to travel by late afternoon, though admittedly I did sleep an extra six hours or so during the day. As inner-ear bugs go it was a fairly mild one, though I was still vaguely feeling it right through until Sunday.

So I ended up coming back last Thursday, for 29 days away in total.

Which is a lot.



 

Aargh!

Apr. 12th, 2023 02:17 pm
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister's husband is in hospital, and with the junior doctor's strike* joined-up care seems to have become an alien concept. There's a pre-agreed treatment if this side-effect comes up, complicated by it being split between two departments in two hospitals in two different cities, and no one on the ground seems to be aware of it, so she's headed into the hospital to bang heads together (hopefully not literally, but I did point out the matron as a potential escalation route independent of which doctors are around, and she reminded me we did get a result going that way after my Dad's stroke).

* I don't blame the doctors, I blame the bloody Tories.

davidgillon: Icon of Hanna Barbera's Muttley sniggering (Muttley Snigger)

 My sister Alexa-called me today to talk about what's going on with her husband's chemo treatment, because his consultant had called them today with an update and spent 20 minutes talking about stuff (never mind it's less than a week since they saw him).

She was telling me how he'd been discussing trials and how his prime contact is "Dr Greystoke at the Bobbie Robson Centre" and I just had to wave at her and say "sorry, but I'm going to have to burst out laughing" - because my mind immediately went Greystoke, Bobby, Greyfriars Bobby! Which fortunately was okay as apparently hers had done exactly the same thing.

https://en.wikipedia.org/wiki/Greyfriars_Bobby

 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Six random syllables do not a pronounceable name make!

I've been helping my sister with a little research into the cancer treatments being offered to her husband and I've come to the conclusion the pharmaceutical drug creators are taking the piss when creating the names for new drugs (or possibly just pissed). How the hell do you pronounce atezolizumab? How the hell do you pronounce it the same way twice in succession? I can sound out complex words in European languages without much of an issue, but this is just a string of nonsense.

I'm reminded of how Traveller used to have random tables for generating words in Vilani or Vargr or various other alien languages: roll once for number of syllables, then roll a dice once for each of them to decide if you roll on the consonant and vowel tables, or the vowel and consontant. Except that gave more pronounceable results.

Or it's as if someone went through Countdown saying "I'll have a vowel, and a consonant, and a vowel, and a consonant, and a vowel, and a consonant, and a vowel, and a consonant, and a vowel, and a consonant, and a vowel, and a consonant", and then just announced the sequence as their longest word.

Arrrggh!

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

I was talking to my sister earlier, who's just had her second appointment with a physio.

"She only has one arm. How did I miss that the first time?"

From her description she's wearing a cosmetic prosthesis, but missing noticing it when she's giving you a physical examination is impressive.

In less amusing news it turns out she has managed to give my brother-in-law Covid, but it doesn't seem like it's a severe strain and he's been offered anti-virals. Just as long as she hasn't given it to my mother, fingers crossed.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
 My sister went along with my mother to the GP earlier, because of a bunch of minor symptoms that individually could be read as "she's getting old", but which we suspected meant the dosage for one of her conditions is too low. And it's a rare condition - 5/100,000 - that none of the practice doctors have shown signs of understanding before, leaving everything to the specialist, so she expected to have to argue.

Doctor "Yes, I think you're right, you should have had a follow-up appointment with the specialists months ago, I'm upping your dosage and writing to their secretary to get this sorted."

Thank god for doctors who read the notes in advance!

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

Does anyone have any recommendations for a guide on how to academic writing?

My sister, as her school's SENCO*, has to do a masters level Postgraduate Certificate in SEND*  (it's a legal requirement of the job), but the guidance she's had is pretty poor, roughly "Academic writing is very different, don't use first or second person and reference everything". Sadly I'm not exaggerating how skimpy it is - I read through it on Sunday morning in under 10 minutes, though it takes a couple of pages to say what I've reduced to a sentence. (I suspect they just haven't taken account of how unsupported people are when everything's being done remotely - three online days to date - and they haven't done academic work in several decades).

Obviously a slightly more useful guide might help her get a better idea of what's expected of her. So is there anything out there? It doesn't have to be subject specific, just cover academic writing in a more useful format.

* Special Educational Needs Coordinator

** Special Educational Needs and Development

 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

The doctor who was told her illness was ‘all in her head’ – and is transforming the treatment of her rare genetic condition

I said Ehlers-Danlos the instant I saw the headline, and was right (and hEDS specifically, so a complete overlap with my symptoms - though I seem to have escaped any GI issues). It's a good article, covering the disbelief that patients often experience, and in this case even when they're a doctor themselves. It even hits on incidence probably being greater than the official 1 in 5000, and the access problems with many EDS/connective tissue disorder clinics being private, even in the UK.

This is all too timely as I seem to be in a hypermobility flare at the moment, in the past 48 hours it's gone neck ache, headache (probably from the neck ache), hip ache, pelvis ache (I could really have done without the sensation of one of my SI joints subluxing), arm ache and we're now back to neck again. fingers crossed for a couple of days duration, and not a couple of months.

In more positive medical news my sister tested clear of covid on Sunday and Monday, so was released back into the wild. It's triggered her asthma, but other than that and being tired she seems okay.

In more rage-inducing medical news, I just found out my step-niece has been walking around with an undiagnosed spinal fracture since before Christmas because her GP accused her of being drug seeking when she presented with acute back-pain, never mind she'd fallen down stairs and into a wall so hard that A&E had diagnosed her with concussion. It took a physio sending her for an x-ray to work out she'd fractured a vertebra in two places, at which point the hospital was"Oh shit, have some morphine, we're making an appointment for you to see the surgeon in the morning." I'm hoping she delivers a rocket to that GP when she's well enough.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister rang me this afternoon to check I was okay.

She's the one with Covid, I'm the one who's fine.

I think the issue was she'd sent me an email and hadn't heard back - which was because it hadn't arrived. Plus she's bored.

Her PCR test came back positive, but she's still waiting to hear about the antivirals - that's supposed to start with a phone call with a couple of days. Ironically she did a lateral flow test today and it claimed she didn't have Covid *headdesk*

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister tested positive for Covid yesterday. But only after having Sunday lunch with my 82yo, clinically extremely vulnerable mother. *headdesk*

Fortunately my mother is testing negative, at least for now.

I've just spoken to Andrea and she describes it as feeling like flu and tonsilitis combined. As she's herself clinically extremely vulnerable she's in line for one of the antibody/antiviral treatments, so we'll see how that goes.

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

So the whole point of going to visit my folks at the end of the month was to overlap my sister being off-work due to half-term. And I've delayed sorting out Planning Fail until I could speak to her in order to figure out if there is anything we definitely need to do together when I'm up.

Only for her to turn around today and tell me "when I was giving you a hard time about not having bought your train ticket yet, I was talking about Christmas. I'd completely forgotten you saying you were coming at half-term."

*headdesk*
 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

I've had a slow day, slept late and then dozed on and off until almost 2PM, then read and had a long bath before I finally sat down at the computer about twenty to seven. Which is when I switched to facebook and saw "Today's Birthdays: Andrea"

That would be my sister.

(I did know it was her birthday, cards and presents have not been forgotten, just actually ringing her).

So I rang expecting to thoroughly abase myself, only to get her husband:

"It's me, feeling guilty"

"And so you should*. She's just getting set up to video call you."

Fortunately she was more inclined to laugh about it, but seriously whoops!!!

* He's a right little stirrer at times. Well, all times.
 


 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister has been off work for a while, first a prolonged chest infection, then various other stuff, but everything was back under control, even the new chest infection that popped up about a fortnight ago and threatened to throw a spanner in the works. (This isn't unprecedented, she typically gets a lot of chest issues during winter due to her asthma). So last week was spent organising a phased return to work - afternoons next week, full days the week after (and half term holidays the week after), agreement she wouldn't do gate duty in the mornings, extra Covid precautions and so on. Or that was the plan.

5:20PM last night she gets a text, from the NHS. "You have now been added to the shielding list and should follow the following precautions, ... if you cannot work from home you must not attend work ... ".

So she had to ring the school's head and say "You know we agreed yesterday I was starting on Monday, well..."

She must have been hovering on the borderline of the shielding list for the whole last year, and it's taken until a fortnight before it is finally lifted on the 31st for them to finally decide which side she's on. It's likely the multiple steroid prescriptions since Christmas that have done it, but she spoke to her doctor last week and he gave no indication it might be a thing.

Fortunately there's quite a lot of stuff she can do from home, given she's deputy head and normally has the SEND and looked after kids portfolios anyway, and on the positive side it does mean there's not really any way they can whinge about the length of time she was sick given it's culminated in her being rated as Clinically Extremely Vulnerable.

Which now means I'm the only one in the family who is not Clinically Extremely Vulnerable, while simultaneously being the one with the most obvious medical issues. I find this ironic.

 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

So my sister prodded me to order a Mothers Day card in with my last food delivery so I could send it in plenty of time for Sunday. But while Asda do have an category for "Mothers Day presents and cards" it turned out to be all presents and no cards. So she told me she would sort something out, which turned out to be ordering one from Etsy to be delivered to me.

It finally turned up today - she ordered one for herself at the same time and it turned up last weekend - and I opened the package to find an envelope that was already addressed "Mam" and "do not open til Mothers Day", and was sealed. So immediately I knew I was going to have to find another envelope to post it in - fortunately it was a relatively small card - and to break the seal - fortunately it was just a single sticker I could carefully peel loose rather than the whole glued seal.

And inside it already says "To Mam, with love on Mother Day, from David x". She could have had it sent to her instead and just handed it to my mother on Sunday.

I managed to squeeze in "Looking forward to hugging you for real", which was made harder by not having a great deal of space and the paper for the card being made with wild flower seeds in, so my pen kept going askew every time I hit one, making my writing even worse than normal. And now it's resealed and in the post and god knows if the post office will deliver it in time given the current delays (I got more Christmas cards after the New Year than before Christmas). And of course it was peeing down on the one day this week I needed to go out.

Discussing it with my sister afterwards "Yeah, I vaguely remember writing in a message, but then I must have changed my mind and had it sent to you instead". Genius!

Oh well, hopefully it arrives.

(The other slightly weird thing is that the order acknowledgement card has an individually packed biscuit and a tea bag glued to it. While I can see what they were aiming for I'm not sure I'd trust a single biscuit to the mercies of the post on a regular basis!)

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister and I picked up a couple of Amazon Echo Show 5s on Prime Day (half price at £40 and I had a couple of £25 vouchers to use), on the theory that they're potentially simple enough my mother will agree to have one - zero chance of getting her to use a smartphone or tablet, never mind a desktop - and so be able to see me even if we're stuck at opposite ends of the country.

So we've just spent two hours trying to get them to talk to each other. As soon as we'd gotten each other into our Amazon contacts they'd happily call our phones if we said "Alexa Call <sibling>", we just couldn't get them to call the blasted Shows instead and couldn't work out what we were doing wrong. So eventually we agreed to give up for the minute and I'd go off and do some research.

So I queued up the youtube vid I'd watched before buying, hopped to the bit where he calls his dad, immediately stopped it again, and *headdesk*ed a couple of times, because the command isn't  "Alexa Call", it's "Alexa Video Call". *headdesk*

I suppose it does show the limitations of Amazon's documentation style, which in the case of the Show amounts to four not very packed credit card sized pages, but that's still annoyingly obvious.

At one point in trying to sort it out I had three different Alexa enabled devices in front of me (Show, tablet and PC), plus my sister on the other end of the line with her Show and tablet and every time one of us forgot and said "Alexa" every bloody one of them would try and respond. I didn't even realise my PC had an active mic until Alexa reacted!
davidgillon: Text: You can take a heroic last stand against the forces of darkness. Or you can not die. It's entirely up to you" (Heroic Last Stand)

Long talk with my sister on the phone this afternoon, other than a bit of a rant about Dominic Cummings it was mostly about her working week and how they're prepping the school for kids coming back. The bit that turned out to be more complex than I would have ever imagined is getting the kids from the gate to their classrooms (bear in mind here we're talking about 4yos in some cases, so leaving them to wander the length of the school on their appropriately socially distanced own is a bad idea). Most schools are going for handover from their parents at the gate, but they've decided they're going to do handover in the cloakrooms - one cloakroom per two classrooms, which works handily with splitting classes in two. So parents will be admitted individually, at a set time, to take their kids to the appropriate cloakroom and then exit via the car park. They've also decided they'll need two teachers per class of 10, so four teachers per year group, so it's just as well they're planning to stagger the return of the year groups (and AFAICT even that's assuming a one third absence rate to get down to numbers the classroom space can handle).

Amongst all this Andrea decided the county's provided signage would terrify the kids so drew up some of her own, which the head passed back to the county for potential use. Next day she told Andrea she hadn't heard anything, so the county was probably not going to do anything with it, only to have to correct herself ten minutes later "I just had an email saying they've passed it on to Public Health England for possible use"!

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

My sister rang earlier: "Do you know if my passport is at Mam's house? I had it when we went to the bank before Christmas. Did you have the papers from that?" (Why we needed to go to the bank is a story in its own right, involving at least five separate errors on their part)

Me: "Don't think I saw it at Mam's. What papers I had from that are in the next room, hang on a minute and I'll check."

Me again: "No, not there."

Her: "It's okay, I've literally just found it."

Me: "Good, though now I'm wondering where mine is, because I thought it was with those papers."

Her: "David!" (You know the tone!)

Fortunately I found it relatively quickly. It was where it's supposed to be in my desk, I just didn't expect it to be there yet, given I'd been using it. But the prospect of something being missing after all the throwing out we did in the last fortnight is slightly terrifying!
 

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)

'Midnight' Mass (5:30PM) with my sister.

Then the pub from 8 'til closing with sis+b-i-l. Which put a karaoke channel(?)/dvd(?) on their video system for general singalong purposes.

So having already carolled, I ended up dueting with sister to various classics such as American Pie.

She has a good singing voice, I don't, but it was a fun night.

Have a good day.

Profile

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
David Gillon

March 2025

S M T W T F S
      1
2345678
9101112131415
1617 18192021 22
2324 2526272829
3031     

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jun. 29th, 2025 12:23 am
Powered by Dreamwidth Studios