davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
…. or the difficulty of keeping specialists focussed on what you want, rather than what interests them.

I saw a new specialist last night, this one a spinal surgeon, but the appointment didn’t go entirely to plan. What I really wanted to talk about was the holistic effects of having injuries at both lumbar and cervical spine, and the fact that what would be a comparatively simple neck/arm problem for anyone else compromises my entire mobility, because it’s interfering with using crutches. She just wanted to talk necks.

Now to give her her due, she did do a reasonably full work-up and did talk to me about the lumbar issues, but no more than reasonable, I don’t think she really understood the extent to which things revolve around my pelvis, and she just plain wasn’t interested in how I’m disabled by the pain I experience, barely so by the fact I spent most of March only sleeping on alternate nights. The pain interested her, what it meant for me didn’t.

I’m reasonably happy about the fact she’s sending me for nerve conduction tests, no matter they are reportedly unpleasant, I’m very happy that she’s thinking about sending me back to pain management, because they will listen to me, but is it too much to ask that she listens to me too?

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches 1)
 
Or less classically, but more accurately, how long does it take a consultant to write a letter? I just checked yesterday's mail and found two letters from the consultant I've been seeing. Clinic date 28th October, letter typed 11th February, letter received 26th February. I knew the guy was disorganised (the saving grace being he clearly knew his job, the problem with that being he's a shoulder specialist and my problem turns out to be neck -- just like I told my GP it would), but this is plain ridiculous, worse, the letter I'm really waiting for is for a clinic six weeks later, and the two are potentially working at cross-purposes. And if it takes three and a half months to refer someone to a locum specialist, will she still be there when the letter arrives? I've got a definite urge to bang heads together. Particularly if it takes them 17 days to send a letter two miles!

I'd actually given up on anything from that appointment as the next clinic, with a different doctor, seemed to reach a slightly different conclusion and wanted to discharge me and refer me through my GP rather than do it in house as with this one. I had planned to chase Rheumatology last week about the delay in my GP receiving the letter from the December clinic as she's reluctant to make a referral without knowing why, but I've been too out of it with my pain levels, ironically enough from the very problem we've been discussing, to do anything about it :(

And beyond that, semantics, dammit! 'He is not keen on having any further treatment' is not a remotely accurate summary of what I said to him, which was that I wasn't prepared to consider surgery at that moment, but very much wanted to follow up on the investigation to understand how it was likely to interact with my existing lower back problems and the osteo-arthritis that showed up on unexpectedly on the bone scan, and the options for long-term integrated management of all three issues that flow out of that.

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davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
David Gillon

March 2025

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