Bendy Me

[davidgillon]

So, I spent a couple of hours this afternoon doing an interview (via email) for DiversifYA (a website that advocates for more diversity in YA fiction, one of the precursors to #WeNeedDiverseBooks) on living with HMS/EDS. It was intriguingly difficult to answer the 'What was it like growing up with HMS/EDS?' question as no one I knew had even heard of it at that point, and my bendiness didn't become noticeably disabling until 24/25-ish - I knew there was something going on, but never realised there was a disability (or three) lurking. I'm not sure it's actually possible to discuss the growing up experience without bringing in the dyspraxia and neurodiversity, as the bullying certainly didn't draw a distinction between them! But again, no one had heard of them at that point (late 60s to early 80s).

I'll post a link when it goes live.

Comments

[shehasathree]

Ooh, fabulous, look forward to reading it!
/Fellow bendy, here via kaberett.

Do Not Tempt Fate, for She is Subtle and Swift to Anger

[davidgillon]

Argh, one of the things I said in the interview piece was that I'm lucky I don't have major issues with dislocations and subluxations.

Guess what just happened.

Twice.

Re: Do Not Tempt Fate, for She is Subtle and Swift to Anger

[shehasathree]

Oh no! /o\

Re: Do Not Tempt Fate, for She is Subtle and Swift to Anger

[davidgillon]

Not too serious fortunately, easy out, easy in.

I've known my shoulder hasn't been too happy for a while, yesterday I had two clear subluxations, where it popped up from where it should be without coming completely out of the socket, and that's sort of made me realise it's probably been doing it for a while. But it's sore for five minutes then back to normal, so could be a lot worse.