2016-01-18

davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Crutches)
2016-01-18 05:37 pm
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Mortuary Report - Interesting EDS Tumblr

Mortuary Report

Stumbled across this last night, I don't remember quite how - oh, yes I do, it was her post about #Accessfail while trying to see Star Wars on the opening night, and the writing is gorgeous, with some great photography along the way. Definitely worth a look for the EDS types and other assorted bendies and spoonies.

The name is possibly a little off-putting, and if you dig back a few months in the archives it does talk about her being a mortician, but even the writing there is just as beautiful. And since she's now moved on it's segued from its original intent. It's now more about living with EDS-H in San Francisco, with a side order of footnotes from selling legal cannabis. Love the idea of the #HospitalGlam selfies.

And the improvised body-hack  solution to a tachycardia episode in one posting (courtesy of her vet boyfriend) is just genius - use ice water to trigger the brachycardia reflex to cancel it out. Obviously there are better ways to handle it given the right medical support, but as improvised first aid.....